Instagram logo.png​​​​​



Skip Navigation LinksHome

​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​Welcome to

Turner Syndrome Support 
for St. Louis!


 

MO-STL-144-Thm.jpg

Mission Statement​​

Turner Syndrome Support for St. Louis creates awareness, promotes the St. Louis Turner Syndrome Clinic, encourages building relationships among peers, ​presents opportunities for parents to connect, ​and provides information and support to anyone affected ​​by Turner Syndrome in the St. Louis and surrounding areas​.

                                                                                                   

Honoring Local ​TS Advocate, 
Jane Chassey


This was written by local butterfly, Cheryl Jost:

My mother, Jane Chassey, is currently in hospice battling pancreatic cancer. These precious days have been spent enjoying our time together as a family and listening to her final wishes. It is her desire that in lieu of any flowers, donations be made toward the publication of this book.

Mom was one of the original supporters of the St. Louis Turners Syndrome Society. For almost 30 years, she raised funds, volunteered at events and worked in the Meet & Greet room at the St. Louis Turners Syndrome clinic in Cardinal Glennon Children's Hospital. 

For the past 5 years, I have been working on a book which details my personal journey of living with Turner Syndrome (TS). Our goal is to raise awareness about this rare chromosomal disorder with accurate information, breaking down stereotypes, misconceptions, and bringing hope and support to newly diagnosed TS families. 

For those who do not know, Turner syndrome is a chromosomal condition describing girls and women with common features caused by complete or partial absence of the second sex chromosome.  TS occurs in approximately 1 of every 2,000 live female births and approximately 10% of all miscarriages.  This calculates to approximately 80,000 – 100,000 girls/women in the United States. Ninety eight percent of TS babies miscarry during the first trimester or are aborted, so we are the two percent that survived!

This book will provide a wide range of medical and support resources to help guide families through the different challenges of each life stage a TS child will progress through. It will be distributed through TS clinics, physician and nursing organizations (endocrinologists, ENT's, cardiologists) and on the Turners Syndrome website.

It is our hope that it will serve as an inspiration to parents who are scared and feel alone raising their TS daughter. My mother experienced these stresses first-hand raising me and also supporting me, with my TS daughter. She loved speaking with newly diagnosed families and providing understanding and knowledge as a parent and grandparent of two TS women.

Thank you very much for your donation and honoring my beloved mother in support of her hearts desire.

UPDATE: It is with saddened heart that we are reminded that our time on this Earth is only temporary. Please lift up the family of Jane Chassey as they celebrate Jane's entry into the hands of our Father in Heaven on August 14, 2017. Jane Chassey Obituary

​​

​​                                           

Variety Show Benefit
for Turner Syndrome - "The Jukebox"

Variety Show 2017 Logo.pngJoin Us For An Evening Of Fun, Laughter And Great Entertainment!

The Queen of All Saints Variety Guild will be performing the Variety Show, The Jukebox, to help raise money for Turner Syndrome Support for St. Louis!

When: Friday, April 28, 2017 at 7:30  p.m – Doors open at 6:30 p.m.

Where: Queen of All Saints Church, 6603 Christopher Road, St. Louis, MO 63129

Cost:  $25.00 for an individual ticket or $250 for a table of 10. Pick up online tickets at Will Call the evening of the performance. Mention "Turner Syndrome" for ticket purchases at the door. 

**FREE** McDonald's Extra Value Meal Coupon 
with each Ticket Purchase

**FREE** Admission for 2 to the 6th Annual TS Walk 
with Table Purchase

Price includes admission, beer, wine,
coffee, soda and popcorn.
Feel free to bring your own snacks as well!
Kids are welcome - This is a family event!
 

LIMITED TIME SPECIAL: 
Reserve a table for 10 before MARCH 31 and TSS-STL will provide a FREE BYOT Bar from Fuzzy's Taco for your table!!

BYOT (Build Your Own Taco) Bar Includes:
1 Side (rice, beans, potatoes, refried beans, etc)
Tortilla Chips and choice of queso, guacamole or salsa
Tortillas or Crunchy Tacos (or both!)
Shredded Cheese, Feta Cheese
Tomato, Lettuce, Cilantro, Garlic Sauce
Fuzzy's Taco Butt Burnin' Hot Sauce
Plates, Utensils, Serving Spoons
Warmers to keep the food hot during the show!

Remember Beer, Wine, Soda, Coffee and Popcorn are all included in your admission!​


Benefit for Turner Syndrome Support for St. Louis80% of each ticket purchased goes directly to Turner Syndrome Support for St. Louis! $20 per ​​ticket is tax deductible​. $200 is deductible for a table of 10. Turner Syndrome Walk is a registered 501(c)(3) nonprofit organization.​

click-here-to-purchase-tickets.jpg

Here's how you can help....
1) Buy a ticket to the show or get a table and invite your friends and neighbors
2) Spread the word via social media
3) Click here for a printable flyer and post it around your area. Heck, print it out and put it on your fridge so you don't forget!

​​                                                                                           

Thank You!!

For such a great turn out

at the 5th Annual TS Walk!

Loyalty.jpgBecause of your support and hard work raising funds, buying shirts and bracelets, recruiting for your Team, making a donation, or just coming out to show your support....we raised over $7000 for TS programs in St. Louis and surrounding areas! Give yourself a pat on the back! Thank you!

                                                                                                   


Meet Avyanna...a horse with Turner Syndrome!​​​​

Recently, a good friend of mine contacted me about her 5 month old horse. She just received the karyotype report and learned the horse has Turner Syndrome! ​Meet Avyanna! My friend, Gloria Bahn, is desperate to help the horse. Therefore, I am reaching out to you. She has been working with both human doctors and veterinarians, as the veterinarians do not know anything about TS in horses! She is trying to gather information to help the horse with hormone therapy. If you have any studies or articles about TS in animals, or if you can think of someone that would be knowledgeable on this topic, please contact Gloria directly at n85romeo@aol.com

IMG_4574.JPG

Our local TS group here in St. Louis took a field trip out to the farm to meet Avyanna personally on November 12, 2016! My TS daughter was very excited to meet Avyanna, she naturally has an underlying connection to the horse! We noticed many similarities between the horse and the TS girls: short stature, moles, very intelligent, and the lovely TS mood swings/melt downs we have all come to know! We had such a fun time! Gloria had a veterinarian and the horse's trainers there to learn from our TS group. One of Gloria's main goals is to be able to concurrently help both the horse and the girls with TS. I think we can accomplish that! We look forward to visiting Avyanna again next year for some horse back rides - after she has been broken in and trained! Thank you Gloria for extending an invitation to our TS circle of friends to come out to your beautiful horse farm!

​                                                                                           

 

​​​Unique visitors to this website.  
















































 Access the "STL TS Connection" database​​​​​

​Join our Mailing List & 

"STL TS Connection" Database!

How do you join TSS-STL? It's easy...by getting on our mailing list!! Get e-mail updates for upcoming Social Events, Meetings, and more! Turner Syndrome Support for St. Louis pro​​vides an online "STL TS Connection"​​​​ database as a great way to connect with other girls in the St. Louis area who are also going through some of the same issues involved with TS. ​Listings in the online "STL TS Connection" are entirely optional. To be included please complete the form below. If you choose to sign up for the mailing list only, without being included in the "STL TS Connection" database,​ then complete just the asterisk items in the form. ​

​*This is a new feature...current members, please complete to be included! This will replace the Buzz Book.​​

Year of Birth - to match up age appropriate connections.
Issues of TS - to help others going through the same.​
​​​​​​

After submitting this form, you will need to check your email in order to confirm your email address to complete your subscription.

* indicates required
() - (###) ###-####

                                                         ​                                           ​​​

Connect with "TSS-STL" on Social Media!


Facebook logo.png  TurnerSyndromeWalk
Twitter logo.png  @ts_stl​
  turnersyndromewalk

                                                                                                     

 Volunteers Needed 

For TS Clinic!

clinic sign.jpg
Please consider spending your time with us and ​meet with other TS individuals and families during our St. Louis Turner Syndrome Clinic. Being able to communicate what you have learned along your TS journey and share medical or insurance information is so important.  What better way to pass it on than to offer support to our girls or even newly diagnosed families during our clinic?  Think about how you can uniquely contribute your time and talents to our St. Louis chapter and new clinic.  We need you!
 

Orientation training is required by SSM Cardinal Glennon Children’s Hospital for anyone volunteering to work in the Meet & Greet Room for the St. Louis Turner Syndrome Clinic. If you are interested in helping us out, please contact Cheryl Jost who is organizing the volunteers. She can be reached at cell number: (314) 606-0779 or email address: cheryl@tss-stl.org​.  There will be upcoming training classes soon at Cardinal Glennon Children’s Hospital which will include a criminal background check, status of immunizations (TB testing), and distribution of  ID badges. A volunteer application will need to be completed in advance in order to receive a required initial phone interview. The application can be found here​.

 

Only serious volunteers need apply. We appreciate any and all assistance...