To spotlight a member for a great achievement in any aspect of their life, please send nominations to firstname.lastname@example.org.
And The "Butterfly Spotlight" Goes To....
Jill Shelby, a 43 year old woman with TS, and her husband James would like to announce that they are parents!! Baby Ryker James was born January 7, 2017, and added to their family through the miracle of adoption! Ryker was a very healthy 6 pounds 10 ounces and 20 inches long! The Shelbys began their adoption journey in the fall of 2011. As the adoption agency they chose was very small, they eventually signed up with a second agency. They also did a lot of marketing themselves on their own in hopes of being seen by the right expectant family. In October of 2016 they were chosen to be Ryker’s parents! They plan on having an open adoption with Ryker’s birth mom. Jill says that anyone considering adoption should seek out a strong support network, either through a mentor who has built her family through adoption, or through a Facebook support group, and do lots of reading!
Sophie Zambrano, age 9
Sophie has been spreading TS awareness this month in honor of February being Turner Syndrome Awareness Month. She was spotlighted on her Pierremont Elementary Facebook page by sharing the symptoms in hopes that parents will recognize undiagnosed daughters. The West Newsmagazine picked up the story and interviewed her to bring even more awareness across West County! Read the magazine article here. Way to go Super-Sophie!
Cheryl Jost, former Turner Syndrome Society of St. Louis Chapter President, was interviewed by Channel 5 Medical Reporter, Kay Quinn to discuss Turner Syndrome. See the February 28, 2014 interview here. Cheryl Jost has also written a book giving an inside personal view of living with Turner Syndrome through the eyes of an adult TS woman. The goal is to educate the public about TS with accurate information, try to break down stereotypes/misconceptions, and bring hope and support to newly diagnosed TS families. She has been working on this book for many years and is now ready for the next step - get it published!!. A "GoFundMe" page has been set up to accept donations for her publishing project.